Highly referenced breast density education hub makes patient-driven updates

To better serve patients in their understanding of mammogram results, DenseBreast-info.org (DB-i) has made changes to the language of their website’s educational materials. 

Citing low health literacy as a barrier between providers and patients in overcoming healthcare disparities, DB-i updated their breast density materials to include more patient-friendly, “simple language.” Prior research has maintained that breast density notifications leave many women feeling confused about their mammographic findings or what steps they might need to take. This is problematic given that women with increased breast density are often at higher risk of developing breast cancer during their lifetime.

“Low health literacy contributes to disparities in cancer care. Mammogram results letters can be difficult to understand and unclear. Lack of understanding can impact decisions and, ultimately, outcomes,” said JoAnn Pushkin, Executive Director, DenseBreast-info. “As a resource women may turn to on the topic, we worked to balance information, delivery, and suggested action. The sweet spot is medically sourced information in simple language, presented in an easy-to-read format.” 

These updates were made at the recommendation of the website’s newly formed Patient Advisory Group. The group suggested that these changes will be beneficial to women who might be hesitant to say that they do not fully comprehend the information contained in their radiology reports, which could also inhibit them from acting on radiologist recommendations, such as utilizing different screening modalities (DBT vs DM, etc.) or screening intervals. 

Density inform letters raise awareness about the implications of dense breast tissue, but they often are unclear about what the woman should do with the information. Health providers may also lack clarity about the risks of dense breasts and the benefits and considerations for additional screening beyond mammography. Women must be able to find clear information to guide their decisions. We are helping them do that.” said Wendie Berg, MD, PhD, Chief Scientific Advisor, DenseBreast-info.org. 

The website is expected to garner 500,000 visits in 2022 and provides medically-sourced information for both patients and providers. 

For more information on the changes, visit DenseBreast-info.org

Hannah murhphy headshot

In addition to her background in journalism, Hannah also has patient-facing experience in clinical settings, having spent more than 12 years working as a registered rad tech. She joined Innovate Healthcare in 2021 and has since put her unique expertise to use in her editorial role with Health Imaging.

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