Highly referenced breast density education hub makes patient-driven updates

To better serve patients in their understanding of mammogram results, DenseBreast-info.org (DB-i) has made changes to the language of their website’s educational materials. 

Citing low health literacy as a barrier between providers and patients in overcoming healthcare disparities, DB-i updated their breast density materials to include more patient-friendly, “simple language.” Prior research has maintained that breast density notifications leave many women feeling confused about their mammographic findings or what steps they might need to take. This is problematic given that women with increased breast density are often at higher risk of developing breast cancer during their lifetime.

“Low health literacy contributes to disparities in cancer care. Mammogram results letters can be difficult to understand and unclear. Lack of understanding can impact decisions and, ultimately, outcomes,” said JoAnn Pushkin, Executive Director, DenseBreast-info. “As a resource women may turn to on the topic, we worked to balance information, delivery, and suggested action. The sweet spot is medically sourced information in simple language, presented in an easy-to-read format.” 

These updates were made at the recommendation of the website’s newly formed Patient Advisory Group. The group suggested that these changes will be beneficial to women who might be hesitant to say that they do not fully comprehend the information contained in their radiology reports, which could also inhibit them from acting on radiologist recommendations, such as utilizing different screening modalities (DBT vs DM, etc.) or screening intervals.